Category: Finances

  • I’m Trying

    In 2011, I qualified for SSDI at first application, without an attorney.

    I started attempting to go back to work in 2018.

    There have been lots of attempts to return to work at this point, all reported to the SSA. 

    I desperately want to NOT need SSDI. It is NOT fun. It is not an aspiration. 

    They know I have the photography business; I have applied for all kinds of jobs that weren’t ideal fits in desperate attempts to find any sort of employment that would allow myself to work off SSDI. 

    I have lost count of how many reviews I have been through, including one in-depth but many more shorter ones. Each one, it is utterly depressing to receive the letter saying my disability is continuing.

    I found my original documentation not long ago. My situation was not expected to improve over time, back in 2011. 

    I am not a good judge as to whether it is improving on one day or another. 

    Ultimately, i do think I am more stable than I was in 2011. 

    And some days, like the day I wrote that post recently about getting the house in order, I do feel like I am getting my life in order.

    And yet, I would absolutely love nothing more than for some employer to take a chance on me. 

    After 15 years, it feels hopeless.

    And so, I have turned to volunteering as an outlet. I console myself that I have my wonderful church groups. I have mostly even given up on marketing the photography business because despite loving it, I am not a profitable photographer; I don’t have the business sense to make it work full-time and at 46 years old, I no longer have the stamina. I have spent embarrassingly amounts more on attempting to have a photography business; exponentially more than the small little amount I did ever make. I have one wedding on the calendar at this point, slightly less than a year from now, and nothing else on my calendar. 

    And, I do write, and I publish the posts I write here to a blog, but I have never quite felt like I was able to be profitable as a writer or blogger either, despite that being a long-term dream, too. I do not even know where to begin to actually become a profitable blogger or writer. I write because writing publicly is an extension of the journaling I have done since I was eight years old. 

    And so, there are still hard days, and desperate wishes that I could go back in time and somehow make long-relinquished careers work somehow despite knowing deep down that yes, there is a disability that is invisible to me but is probably wildly apparent to everyone else. 

    And I despise that I have become so reliant on the system, and I desperately do sort of wish self-esteem-wise that they would somehow review me and magically find me not needing SSDI somehow, that yes, that there has been substantial improvement in my condition. 

    And, I know that I am lucky, too, even if I don’t feel that way. 

    But, at this point, I just desperately wish for normalcy, and the ability to support myself, and I am soooo tired of feeling like money is an issue. Because in our house, it is always an issue. And that’s a tough thing to admit with the level of meticulous budgeting I do daily. That could be a whole other post. But it is the truth. 

    Fediverse reactions
  • Taming the Mess and the Schedule

    The inside of our home is now my sanctuary.

    In late April, I brought in someone to help me start cleaning up our house. To say the boys’ rooms were problematic was an understatement. It wasn’t their fault: We have five pets, and I hadn’t gotten in to help them declutter or clean much in probably three years. 

    Over the course of three visits, my helper and I tamed the mess entirely. 

    The first visit, we tackled Porter’s room. I’d already packed up a good bit of things that he’ll want to save, so a lot of our project was rearranging books and actual de-furring every item and surface. And, getting rid of a lot of trash, too. 

    But with her first visit, I gained momentum to keep going on my own. I cleaned up the mess in the dining room. I tackled boxes in our bedroom. I re-arranged our bedroom. 

    The second visit was Oliver’s room (which was not in as bad shape as the others because he has a cat that lives in his room so his room had to be cleaned at least a little), and also the bathrooms in the house. 

    The momentum continued after her visit; I kept up maintenance cleaning and managed to make the kitchen desk shelving (and desk and kitchen table themselves) presentable and useable. 

    The third visit was Liam’s room and all the floors in the house, and some dusting.

    And, all of a sudden…..I have a sanctuary baseline to work with to maintain.

    We have a four-bedroom, single-story house with all luxury vinyl plank and tile flooring throughout. And two and a half bathrooms, one of which has a tile and grout shower and a garden jetted tub. 

    It’s a big house. Big by my standards, anyway. 

    So, here’s my new summer schedule….. I worked it out and the actual work each day should not be more than an hour and a half on the heaviest work days. The schedule will change in the Fall both because the big boys will be off at their colleges and my schedule will change too:

    And having the schedule worked out like that, I feel free to create the kind of daily rhythm I struggled to establish and maintain when the boys were younger. I’m not 100% sure that two loads of laundry per day will be necessary, even, but if I don’t keep it in the schedule I won’t stay on top of the laundry and then there will be a dozen loads to do in one day. 

    I’m finding that I loved raising my boys, and I love even more now that two are successfully out of high school and the third is solidly in middle school. Motherhood has not been easy or come naturally to me and I am realizing I have been mostly in survival mode for nearly twenty years. 

    Now that there is room to breathe and no toys underfoot, my psyche is relaxing quite a bit. And I love chatting and spending time with my big boys now that no one is little. I was not the baby-person in the household; most people know that person was solidly Jared. 

    I realize that house cleaning is not rocket science; I was learning to tend to my house as a young child. It’s not lack of knowledge or even lack of discipline; it’s that somewhere over the last twenty years of life and motherhood, I lost my bearings. 

    And I’m under no illusion: it will take work to maintain this momentum, and I deal with mental illness and there will be days I just cannot. 

    It’s strange though, to go from feeling hopeless about the state of our house in April to all of a sudden feeling like I could have guests over right now if I wanted to. 

    There would be more photos, but the beds are not made because it is sheets day. 

    I’ve long since struggled with waking in the morning, but with this schedule and a sense of hope and feeling of gratitude about my life, I managed to wake up at 5:00 this morning and have my quiet time before everyone else was up. That is the magic part of the day for me, and my days don’t feel complete when I oversleep out of depression or exhaustion.

    A win.

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  • Maximalist on Jewelry, Not So Much on Beauty Products

    This post is expanded from a Facebook post.

    Jared and I went shopping at Ross last week, and Jared picked me out two outfits. This floral dress is one of his choices; I snapped the photo while we were on our way to Costco today.

    My husband is biased, but he commented more than once when we were in Costco about how lovely I looked today. I’m pretty sure he liked seeing me in a dress he picked out himself.

    And Jared’s comments reminded me that while I am 46, I am mostly rejecting typical beauty regimens for women in their 40s.

    Here’s my routine:

    I mostly exclusively use Trader Joe’s 3-in-1 shampoo, conditioner, and body wash for their intended purposes as my sole product in the shower.

    I found TIRTIR milk toner at Costco probably a year ago, and I use it on my face immediately after I get out of the shower. It came in a double-pack, and I only just opened the second bottle in the last probably three weeks.

    Then, I use L’Oreal Pro Longer 10-in-1 cream on my hair before I comb it out, and then I spray my hair all over with Kenra Sugar Spray, and then comb it out, still wet. I used to use the entire L’Oreal Pro Longer line but 1) it’s massively expensive and 2) it weighed my hair down too much.

    Next, I put probably 5-6 drops of Trader Joe’s jojoba oil on the palm of my hand and I rub it slightly into my hands and then rub it onto my neck and chest area. Then I used what’s left on my fingertips to coat the last two inches of my hair lightly in the jojoba oil film.

    These days, I am mostly letting my hair air dry unless I specifically want a blow-dried look and know I will want to leave my hair down.

    But most days these days, I am putting my hair up in a French pin. The Ulta ones I have posted about in other posts are my standard go-to’s right now.

    I don’t use any makeup at all, other than a Neutrogena lip oil and I do use that religiously.

    I am eleven months post-surgical-menopause, and I’ve noticed in the last two months that my hair is a different consistency now: it’s always been baby fine, but now it feels exceptionally delicate and its graying process is vastly faster now. I’m not upset by this in the least, but it’s made this routine all the more important. When my weight fluctuates I do notice aging in my neck, and my bone health must also be delicate because my scoliotic spine is definitely not stable right now.

    I’ve tried other products, and here I will admit something I rarely think about but is true: I haven’t actually used lotion on my hands or other real moisturizers in a decade, other than the jojoba oil and the TIRTIR toner. My hands always looked young, but they still pretty much look like they did in my 30s.

    I tried The Ordinary’s line probably two years ago and that didn’t last more than a couple of weeks. My skin is naturally, pre-menopause, very greasy, and all that stuff did was weigh my skin down and make me break out.

    I also gave up most makeup over a decade ago. For a couple of years recently I used a blush cream most days, but I gave that up probably eight months ago and honestly, I feel better and I think I look better because of it.

    My diet is also a factor in all this, but that is a post for another time.

    A note about my hand photo: yes, my jewelry is maximalist. No, in the grand scheme of things, it is not expensive. Jared kindly upgraded my original center diamond to a lab diamond that was less than $200 for our 20th, that we had set in a 4-prong setting I found on Etsy, and the eternity rings are moissanite and sterling, and the index finger ring was a $32 Kudzu find that I treasure because I was out shopping with a friend the afternoon I found it. I like shiny, not expensive. Jewelry on a budget is a whole other post I could do, but not today.

    **Edited to add: Not a sponsored post. I just really like the products I talk about here, and the places I really shop on a regular basis.

    **Also adding: I am low-key anxious about my hair turning silver and its much more delicate texture. The consolation I get is that I never have gotten caught up in the highlighting or dyeing treadmill, so the natural silver streaks are somewhat of a novelty that is happening gradually. There will never be a root line or a synthetic transition I have to battle.

    **Also also: Jared really likes shopping for me. I sent him to ThredUp tonight to look around at dresses and he’s sent me probably a dozen links to dresses. All of which were overpriced, but it is the thought that counts, right?

  • Maybe Recliners Aren’t the Be-All-End-All

    I have severe scoliosis. As in– I started wearing a back brace at age six, wore some variation of said brace through age 13 (think hard plastic shells molded from a cast of my whole torso, made every few months as I grew)…..it was not fun times.

    And at age 13 when I had surgery for an 87-degree curve, I really hoped that was the end of it. I grew from five foot six inches to five foot seven and a half inches in 10 hours. True story.

    But….life happened, four pregnancies and three healthy boys happened, and here I am at age 46 with a secondary thoracic curve that has to be at least 45 degrees in addition to the original lumbar curve, which has settled also at 45 degrees or so.

    Suffice it to say between the curves and rotation, my whole skeletal system is a mess.

    For the past six years, we have loved our Kirkland Signature leather electric reclining couch. We now are at Costco all the time, but we actually scored our couch at a local salvage store for $250, brand new apparently. When we bought it I thought we’d be doing well to get six months of use out of it, and here we are six years alter, and it still works.

    I have been in physical therapy now for months, and after last week’s session I decided I might be done with the couch. I’ve known for a long time that it was not good for my back, so I decided to just take the week and sit, when I sit, in this straight back cushioned rocking chair with the pillow, as pictured above.

    And…..something minor-miracle-wise, happened:

    I found myself sitting less. A lot less. I started getting back on my stationary exercise bike daily. I found myself sitting to do what I was going to do and then getting back up to resume household tasks as needed. And my mental health has been better on the whole, as well.

    I did not realize that what one sits on can literally make a change in lifestyle in the span of a week.

    So, the couch is posted on Facebook for giveaway, and we will find a better recliner for my husband, who legitimately does need one since he sleeps out here in our living room occasionally.

    Yes, we are a couple that does not always sleep in the same room, and no, there is nothing wrong with our marriage.

    I suppose that is another post, though.

  • It’s Just a Toe

    On January 21, I had a permanent matrixectomy on my left big toe. And for eight weeks and two days, I completely avoided posting any public pictures of that toe– it was gross.

    But Friday morning, March 20, I woke up and saw when I looked at my feet that there was no 1/2 inch square scab in the bottom left hand corner as had been there the night before, when I went to sleep.

    So, bored on Friday afternoon, I took the above photo with my phone, and captioned it this on Facebook:

    “It took 1 day shy of exactly two months for my gimpy toe to have the 1/2 inch square scab to fall off, apparently in one fell swoop overnight. My toe feels no different, and I didn’t feel it happen, but my big toe looks so weird without a nail or anything there even though I’ve known for 2 months this was the goal.

    To me it looks like I just have pink fingernail polish on that one toe.

    I spared y’all all the photos I took of the gore as it was in progress over the past two months— it was really gross especially about the 2-week mark. But I couldn’t resist this one.”

    And I thought nothing more about it, until I saw on Saturday that the post had 20k something views.

    As of this writing, Monday afternoon March 23, that post has had 73,212 views.

    The lone negative comment was that I needed clean my shoe, which if anybody knows anything about Birkenstocks, that is a nonissue.

    And honesty time: Had I known that that photo was going to go mini-viral: I would have gotten out the good camera. I would have trimmed on that second toe which is not quite straight with its nail, where the right side of the nail skims upwards slightly. I would have gotten the green strap from my physical therapy off the coffee table behind my foot. I would have probably, yes, worn different shoes or better yet, no shoe at all.

    It’s just a toe, people.

    But it is pretty funny that a stadium or two’s worth of people find it fascinating to look at a toe without a toenail.

    I posted the following as part of the comments:

    “Since people seem to like this post, the back story: This toenail had been giving me ingrown problems at that top left corner since I was 13 years old, and had become fungal to the point it had stopped growing over a year ago. It was so thick that I could no longer cut it at all myself. At age 46, I said enough and went to the podiatrist for a matrixectomy. I did try the prescription anti fungal lacquer and Vicks and ketoconazole cream prior to giving up. 

    I am extremely squeamish about people messing with my toes and especially my toenails. I told my doctor about my phobia, and she was very compassionate both with local anesthesia and patient with me. My doctor was great, and the whole procedure after insurance (admittedly, we do have good insurance) cost about $346 out of pocket. 

    I took Tylenol for the first two days but after that needed no pain meds, and I did have to wear flip flops (not these Birks) in the dead of winter (procedure was January 21) for a long time, and in awkward social situations at times. 

    But, for a lifetime of not having to deal with that toenail anymore….100% worth it.”

    Thankfully, most comments have been kind; a few people have shared their own feet or tips for future use as my foot settles.

    But really, people. It’s just a toe.

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